Down Syndrome Association

Our helpline is a unique service: we are the only helpline that anyone can contact on any topic related to Down’s syndrome. Our knowledgeable Information Team will answer questions on any topic that arises throughout the whole lifespan of a person who has Down’s syndrome.

Contact with the helpline may be through telephone, email or video calls. Every call and query is different…a call may require a short chat, a detailed discussion, reassurance or follow up emails, research and letters.

Together with a team of specialist advisers, our Information Officers can offer advice about any aspect of living with Down’s syndrome, including:

• Support for expectant parents with a prenatal diagnosis or parents whose newborn has just been diagnosed

• Benefits advice

• Education and development

• Social care, day-to-day support for adults

• Rights

• Health. We also are able to make referrals to the UK & Ireland Down Syndrome Medical Interest Group (DSMIG).

• Speech, language and communication

• Complex needs

• Ageing and dementia