Fragile X Society

The Fragile X Society provides information, help and support to individuals and families affected by Fragile X Syndrome, as well as the professionals working with them.

Our Families and Professionals Advisors can be contacted by families with a confirmed diagnosis or by those concerned that Fragile X may be the cause of a family member’s difficulties. Our advisers can provide information tailored to your individual needs as well as share their knowledge on the many aspects of Fragile X Syndrome including behaviour, communication, education and carrier issues. We know that many of our community welcome the opportunity to speak directly to someone with an understanding of the syndrome, alongside the difficulties and triumphs that can present for carers.

 Whatever your need, please do call us on [01371 875100](tel:01371 875100) or send an email to info@fragilex.org.uk and we will do our best to help or point you in the direction of someone better placed to give that help.

Our Families and Professionals Advisors can also be contacted by professionals working with individuals affected by Fragile X including school and college staff, care and support workers, health care professionals, social workers and care managers. You can contact them by email or telephone.